While serving with the U.S. Navy in the Philippines during World War II, the teenaged Bob Perske became aware of the vulnerable and disabled in society and turned his life toward advocacy on their behalf. Studying for the ministry after returning to civilian life, Perske was appointed chaplain at the Kansas Neurological Institute, serving children with intellectual disabilities for 11 years, after which he became a full-time street, court, and prison worker — a citizen advocate — laboring in the cause of deinstitutionalization and civil rights of persons with disabilities, particularly those caught in the legal system. After Bob married his wife Martha in 1971, the two became partners in work, with Martha often illustrating Bob’s numerous books and articles. In 2002, Perske was recognized by the American Bar Association as the only non-lawyer to ever receive the Paul Hearne Award for Services to Persons with Disabilities.
The Perske Papers contains a fifty year record of published and unpublished writings by Bob Perske on issues surrounding persons with disabilities, along with correspondence, photographs, and other materials relating to the Perskes’ activism. The correspondence includes a particularly rich set of letters with a fellow advocate for persons with disabilities, Robert R. Williams.
Robert (Bob) and Martha Perske have been advocating for persons with intellectual disabilities for the past five decades. Married in 1971, their work together began at the Kansas Neurological Institute (KNI), an institution providing care for 250 children with intellectual disabilities, where Bob served as chaplain. During this time he wrote the first article on ministry and mental retardation. His work was used by families, clergy, and congregations as a learning tool to better understand those with intellectual disabilities.
Throughout the 11 years Perske worked at KNI, his commitment to serving children with intellectual disabilities prompted other forms of service including joining several volunteer organizations that fought to end institutionalization of persons with disabilities. Perske went on to serve as executive director of the Greater Omaha Association for Retarded Citizens (GOARC), which created one of the earliest community based services in the nation, and later the Eastern Nebraska Office of Retardation (ENCOR), before becoming an advocate for persons with intellectual disabilities in prison, supporting clients and their attorneys in their fight for justice. In 2002, his more than two decades of advocacy were celebrated when he became the only non-lawyer to receive the American Bar Association's Paul Hearne Award for Services to Persons with Disabilities.
Among his many accomplishments, Bob Perske may be best known as the author of 16 books and hundreds of articles on topics ranging from caring for disabled children to providing support for families. Martha contributed to these efforts as illustrator and editor. She first began sketching the faces of the young residents at KNI and soon perfected her natural talent. Her drawings, simply executed in pencil but incredibly beautiful and expressive, illustrated first Bob's books and later two major reports on disabilities for Presidents Nixon and Carter and the 1981 International Year of Disabled Persons commemorative stamp.
Over the years, the couple have been recongnized for their contributions to the care and treatment of persons with intellectual disabilities and have won numerous awards. They continue their work in Darien, Connecticut, where they reside.
Scope of collection
The Perske Papers document the couple's life-long efforts to advocate for services and civil rights for persons with intellectual disabilities. As a compassionate observer of the challenges facing individuals with disabilities and their families, Bob Perske used his skills as a communicator to present ideas and connect people both through his writing and speeches. Martha, his partner in all things, used her natural talent as an artist and editor to compliment his writing. Their combined efforts are represented in drafts of speeches, published articles, and artwork.
Bob Perkse was also instrumental in creating and maintaining networks of support for persons with intellectual disabilities wrongfully accused and convicted of crimes. Materials in the collection chronicle the status of various cases that he was involved in and include transcripts of interviews, media coverage, and his own communications. Images of the accused, sometimes photographed with Perske, further demonstrate his efforts to put faces to the names of these individuals as well as document his ongoing advocacy.
Bob Perske has been writing about the advocacy needs of persons with intellectual disabilities since his days as pastor at the Kansas Neurological Institute (KNI). Materials include several articles and speeches written and delivered by Bob as well as information about his efforts. Many of Perske's writings here relate to his work with persons with intellectual disabilities wrongfully accused and convicted of crimes. Materials also include the extensive writings of Robert (Bob) Williams, a leader in the disability movement, who is a long-time collaborator and friend with Perske. Williams' writings reflect his work as policy advisor and advocate as well as his personal history living with cerebral palsy expressed both in autobiographical pieces and in his poetry.
Extensive correspondence files of Bob Perske concerning his writing, advocacy, and efforts on behalf of prisoners wrongly accused; includes correspondence of Bob Williams both with Perske and others. Subject files contain related publications, background or research materials, reports, transcripts, and poems.
Files document Perske's work on behalf of persons with intellectual disabilities wrongfully accused and imprisoned. Materials are organized by the name of the individual and files include background information on crimes, legal cases, media coverage, efforts to rally support, and communications about the individual or the case.
Images and some audio or visual materials related to the many cases of persons with intellectual disabilities wrongfully accused and convicted of crimes that Bob Perske documented and supported through his writing and other advocacy activities. Also includes some of Martha's artwork , images of Bob Williams, and several recorded speeches.
Inventory
Series 1. Writings and Testimonials
1965-2012
Advocacy Made Uneasy
undated
Box 1: 1
Anderson, Stannie: "At Kansas Neurological Institute--Happiness is a Joyful Chapel"
1970
Box 1: 2
Brooks, George: "Diana: 'She Was Attentive, Very Shy'"
1997
Box 1: 3
Article about Princess Diana's interest in the Perskes' book, Circle of Friends, and a meeting Robert Perske had with her. Published in Darien Times after the death of Princess Diana.
Confessions of an Outlaw Advocate
undated
Box 1: 4
Davis, Leigh Ann: "Robert Perske: A Mentor for Our Movement and Friend for Our Soul"
2007
Box 1: 5
Douglas, Dennis: Death Watch: Three and Out
1993
Box 1: 6
Editorial: Compassion for the Least
2000
Box 6: 66
Editorial: To Prevent Injustice, Tape Confessions
2001
Box 6: 67
Fight or Flight
undated
Box 1: 7
Freedman, Eric: Earl Washington's Ordeal
2001
Box 1: 8
Gaventa, Bill: Remembering the Pastoral Voice of Bob Perske
2003
Box 1: 9
Griffin, Keith: Williams: Great Deal to be Hopeful About
1986
Box 1: 10
Human Rights Watch: Beyond Reason: The Death Penalty and Offenders with Mental Retardation
2001
Box 6: 68
Johnson, Mary: Bob Williams, Poet and Advocate
1994
Box 1: 11
Keyes, Denis W.: Book reviews: Pencil Portraits, 1971-1990
1999
Box 6: 69
Keyes, Denis, Edwards, Willliam, and Perske, Robert: People with Mental Retardation are Dying, Legally: At Least 44 have been Executed
2002
Box 6: 70
Lewis, Lisa: A Soul Touching A Soul
1972
Box 1: 12
Man Behind the Legend: A Candid Discussion with Robert Perske
1999
Box 6: 71
McLeod, Lateef: Interview with Bob Williams
2012
Box 1: 13
Nixon, Amy Ash: Fighting for Another's Vindication
2000
Box 6: 72
Perske, Martha: Art for Johnson and Johnson
1987
Box 1: 14
Perske, Martha: Early Years
1976-1978
Box 1: 15
Perske, Martha: Profile
2009
Box 1: 16
Perske, Robert: Advice for Novelists, The Writer
1984-1985
Box 1: 17
Perske, Robert: Affirmation of Faith for the Mentally Retarded
undated
Box 1: 18
Perske, Robert: Ain't Got No Resume
2005
Box 1: 19
Perske, Robert: Americans with Disabilities Act, Anniversary Notes
undated
Box 1: 20
Perske, Robert: Ballad of David Wayne Lee
2000
Box 1: 21
Perske, Robert: Battle for Richard Lapointe's Life
1996
Box 1: 22
Perske, Robert: Bewildering Life of Richard Lapointe
1997
Box 1: 23
Perske, Robert: "Big Bang" and Down Syndrome
2006
Box 1: 24
Perske, Robert: Bob Williams and the Great ADA Awakening
2012
Box 1: 25
Perske, Robert: Bob Williams Wrote Donna Shalala's Speech
1999
Box 1: 26
Perske, Robert: Bob Williams vs. Bill Buckley
1987
Box 1: 27
Perske, Robert: Book review: Lost in a Desert World: An Autobiography
2000
Box 6: 73
Perske, Robert: Celebrating 50 years of Better Lives for Children with Disabilities
2002
Box 1: 28
Perske, Robert: Chaplains Role in an Institution for the Mentally Retarded
1965
Box 1: 29
Perske, Robert: Child with Retardation Today--Adult of Tomorrow
1979
Box 1: 30
Perske, Robert: Chronology: The Life of Joe Arridy
2009
Box 1: 31
Perske, Robert: Coerced False Confessions
2003
Box 1: 32
Perske, Robert: Coming Out of the Darkness: America's Criminal Justice System and Persons with Intellectual Disabilities
2007
Box 1: 33
Perske, Robert: Concern for Daryl Atkins
2005
Box 1: 34
Perske, Robert: Conviction
2005
Box 1: 35
Perske, Robert: Criminal Justice and Mental Retardation: A Journalist's Note
1999
Box 1: 36
Perske, Robert: Cutting Edges in Program Services for Low, Severa, and Profoundly Handicapped Persons
1976
Box 1: 37
Perske, Robert: Day of Contrition
1997
Box 1: 38
Perske, Robert: Deadly Innocence: Joe Arridy Receives Pardon 72 Years After His Execution
2012
Box 1: 39
Perske, Robert: Deception in the Interrogation Room: Sometimes Tragic for Persons with mental Retardation and Other Developmental Disabilities
2000
Box 1: 40
Perske, Robert: Defending the Mentally Disabled
2004
Box 1: 41
Perske, Robert: Did Earl Washington Try Too hard to Please Cops?
1993
Box 1: 42
Perske, Robert: Dignity of Risk and the Mentally Retarded
1972
Box 1: 43
Perske, Robert: Dignity of Risk and the Mentally Retarded
1972-1973
Box 1: 44
Perske, Robert: Distinguished Alumni, South Denver High School
2004
Box 1: 45
Perske, Robert: Earl Washington, Jr. Lives
2004
Box 1: 46
Perske, Robert: Earl Washington, Jr. Lives: Margaret Edds Shows Why
2004
Box 1: 47
Perske, Robert: Executing the Mentally Retarded
2001
Box 6: 74
Perske, Robert: False Confessions by Persons with Mental Retardation and Similar Disabilities
2004
Box 1: 48
Perske, Robert: False Confessions: Persons with Mental Disabilities Later Proven Blameless
2004
Box 1: 49
Perske, Robert: False Confessions from 53 Persons with Intellectuall Disabilities: The List Keeps Growing
2008
Box 1: 50
Perske, Robert: False Confessions from 75 Persons with Intellectual Disability
2011
Box 1: 51
Perske, Robert: Final Judgement
1996
Box 1: 52
Perske, Robert: Foward: Justice Advocacy Guide
2006
Box 1: 53
Perske, Robert: Forward: Out of the Darkness and Into the Light: Nebraska's Experience with Mental Retardation
2001
Box 6: 75
Perske, Robert: Gentle Memory of Roland Johnson
1994
Box 6: 76
Perske, Robert: Gentle Words to Self-Advocate Friends
1999
Box 6: 77
Perske, Robert: Gisli Gudjonssons Penchant for Corroboration
2007
Box 1: 54
Perske, Robert: Good Cop
2004
Box 1: 55
Perske, Robert: Goodbye Ollie
2004
Box 1: 56
Perske, Robert: Goodbye Rosemary Dybwad
1992
Box 6: 78
Perske, Robert: Great ADA Awakening and Bob Williams
Williams, Robert: Comments at Temple University Graduation
1992
Box 2: 94
Williams, Robert: Comments on 5th Biennial Conference of the International Society on Augmentative and Alternative Communication (I.S.A.A.C.)
1992
Box 2: 95
Williams, Robert: Communication Control and Choice
1988
Box 2: 96
Williams, Robert: Communication Imperative: Supporting People with Severe Disabilities
1988
Box 2: 97
Williams, Robert: Creating a New World of Opportunities
1989
Box 2: 98
Williams, Robert: Civil Rights of Institutionalized Persona Act (CRIPA) Draft
2002
Box 9: 09
Williams, Robert: Draft of "Choice Futures"
1989
Box 3: 1
Williams, Robert: Expanding Choice and Self-Determination in the Lives of Americans with Severe Disabilities
1988
Box 3: 2
Williams, Robert: Fighting for Our Lives
1995
Box 3: 3
Williams, Robert: Free Expression Now
1991
Box 3: 4
Williams, Robert: Friends as He Sees Them Notes
1975-1977
Box 3: 5
Williams, Robert: Guggenheim Book Plan
1991
Box 3: 6
Williams, Robert: Harrisburg Address
1993
Box 3: 7
Williams, Robert: In a Struggling Voice
1989-2010
Box 3: 8
Williams, Robert: Independently Speaking
2006
Box 3: 9
Print outs of entries from Bob Williams' blog.
Williams, Robert: Kathy's Story and Correspondence
1993
Box 3: 10
Williams, Robert: Keynote Speech to Connecticut Annual State Convention
1990
Box 3: 11
Williams, Robert: Kindred Spirits
1989
Box 3: 12
Williams, Robert: Letter to Accreditation Counsil
1989
Box 3: 13
Williams, Robert: Letter to H.R. Turnbull III: qality of life
1989
Box 3: 14
Williams, Robert: Letter to Pat Mirenda: crucial values of communication
1988
Box 3: 15
Williams, Robert: Lobbying of Senator Lloyd Bensten
1988
Box 3: 16
Williams, Robert: Need for Choice in a Self-Initiated Lifestyle
1988
Box 3: 17
Williams, Robert: notes, conversation with Robert Perske
1984
Box 3: 18
Williams, Robert: notes, conversation with Robert Perske
1988
Box 3: 19
Williams, Robert: Notes on Statement to Family Support Conference (Boston, Mass.)
1989
Box 3: 20
Williams, Robert: Official Trivialized Life of Glays Burr
1985
Box 3: 21
Printed in Hartford Courant on August 8, 1985.
Williams, Robert: Open Letter to My Friend: Ivanhoe Morris
1975
Box 3: 22
Williams, Robert: Oral testimony, Voting Rights of Americans with Disabilities
2001
Box 3: 23
Williams, Robert: Osmosis
1976
Box 3: 24
Williams, Robert: Passage of the American Disabilities Act Points Way to Higher Common Ground
1990
Box 3: 25
Williams, Robert: Personal reflection: attending public school
1980
Box 3: 26
Williams, Robert: Plea for Proper Medicad Planning
2005
Box 3: 27
Williams, Robert: Poems
1975-1982
Box 3: 28
Williams, Robert: Poems and Writings to Martha Perske
1998
Box 3: 29
Williams, Robert: Quote: address to United States-Isreal Bi-National Conference in Coordination and Integration of Children's Health, Education, Rehabilitation, and Social Service
1995
Box 3: 30
Williams, Robert: Red Line Community Papers
1999
Box 3: 31
Williams, Robert: Research Proposal on Free Speech Rights
1992
Box 3: 32
Williams, Robert: resume and experience
2001
Box 3: 33
Williams, Robert: Retardation and the Electric Chair
1992
Box 3: 34
Williams, Robert: Review of "Under Eye of Clock" by Christopher Nolan
1989
Box 3: 35
Williams, Robert: Speech: ASE College to Career
undated
Box 3: 36
Williams, Robert: Speech: Association of University Centers on Disabilities
2011
Box 3: 37
Williams, Robert: Speech: Barriers and Creating Access to Assistive Technology
1993
Box 3: 38
Williams, Robert: Speech: Commission for the Federal Administration of Developmental
1994
Box 3: 39
Williams, Robert: Speech: Communication Devices
1993
Box 3: 40
Williams, Robert: Speech: National Democratic Congress Youth Summit
1998
Box 3: 41
Williams, Robert: Speech: National Democratic Congress Youth Summit
2012
Box 3: 42
Williams, Robert: Speech: New England T.A.S.H
1992
Box 3: 43
Williams, Robert: Speech: personal assistance services (Texas)
1993
Box 3: 44
Williams, Robert: Speech: "Plenary" and "Remarks on the Live and Example of Ed Roberts"
1995
Box 3: 45
Williams, Robert: Speech: President Obama
2009
Box 3: 46
Williams, Robert: Supporting Families in Poverty
1989
Box 3: 47
Williams, Robert: T.A.S.H. Annual Report
1987
Box 3: 48
Williams, Robert: T.A.S.H. Newsletter
1993
Box 3: 49
Williams, Robert: T.A.S.H. Newsletter, Poetry (San Francisco)
1989
Box 3: 50
Williams, Robert. T.A.S.H. Plenary (San Francisco)
1995
Box 3: 51
Williams, Robert: T.A.S.H. Presentation and Correspondence (Boston)
1985
Box 3: 52
Williams, Robert: testimony on power of Assistive Technology
1991
Box 3: 53
Williams, Robert: thoughts on newborn children with severe disabilities
1985
Box 3: 54
Williams, Robert: Three Least Dangerous Assumptions Regarding Human Communication
1989
Box 3: 55
Includes comments from Robert Perske.
Williams, Robert: "View USA Today Refused to Print: Cerebral Palsied Man Challenged Pessimist's Stand"
1985
Box 3: 56
With introduction by Robert Perske.
Williams, Robert: Welcome...to Hear Our Voices
1991
Box 3: 57
Published in first issues of VOICES.
Williams, Robert: Will
1987
Box 3: 58
Published in T.A.S.H. Newsletter, includes related correspondence.
Williams, Robert: Witness Testimony: House Committee on Energy and Commerce
2003
Box 3: 59
Williams, Robert: Written Statement to the Health and Environment Subcommittee
1988
Box 3: 60
Williams, Robert and Perske, Robert: People with Disabilities Can be Helped to Make Their Own Choices
1988
Box 3: 61
Series 2. Correspondence and Subject Files
1945-2012
Administration and Developmental Disabilities
1995
Box 3: 62
American Association on Mental Retardation annual meeting
2005
Box 3: 63
ARC/Johnson & Johnson partnership
1987
Box 3: 64
ARC of the United States national convention
2007
Box 3: 65
Arridy, Joe: articles
2006
Box 3: 66
Arridy, Joe: articles and correspondence
1997
Box 3: 67
Arridy, Joe: articles and correspondence, pardon
2011
Box 3: 68
Arridy, Joe: articles and correspondence, pardon
2011
Box 3: 69
Article: 16 Executed in U.S. were Probably Innocent, Boston Globe
Certificate of Appreciation: Connecticut Department of Correction
1997
Box 3: 75
Child Advocates Summit on Connecticut's Children with Disabilities: flyer
2006
Box 3: 76
Feeatures Robert Williams.
Child developmentalist creed
undated
Box 3: 77
Conference on Cognition Issues in the Courts
2006
Box 3: 78
D.C. ARC: community training
1980
Box 3: 79
Dybwad Humanitarian Award: workers on behalf of Earl Washington, Jr.
2004
Box 3: 80
Endorsement: Family Diaries, ed. by Judy Elbaum and Lonye Rasch
2002
Box 6: 107
Fellowship
2000
Box 3: 81
Volume 66, no. 5-6 contains photograph of Robert Perske on front cover.
Georgia Advocacy Office, Inc.
2006
Box 3: 82
GOARC Gazette
1971 Aug-Nov
Box 3: 83
GOARC Gazette
1972
Box 3: 84
GOARC Gazette
1973
Box 3: 85
GOARC Gazette
1974
Box 3: 86
GOARC Gazette
1975
Box 3: 87
Greater Omaha Association for Retarded Children: annual reports
1973-1974
Box 3: 88
Healing Community award
1987
Box 3: 89
"Just Us" for Richard Lapointe: newsletter
1993
Box 3: 90
For the friends of Richard Lapointe.
Kansas Neurological Institute (KNI): Interfaith Chapel
1962
Box 3: 91
Kansas Neurological Institute (KNI): services and songs
1962-1969
Box 6: 108
Kansas Neurological Institute (KNI): services and songs
1963-1972
Box 6: 109
Kansas Neurological Institute (KNI): services and songs
1965-1969
Box 8: 1
Kansas Neurological Institute (KNI): services and songs
ca. 1969
Box 8: 2
Letters: grandchildren
1990-1993
Box 8: 3
Letters: grandchildren
1994
Box 8: 4
Letters: grandchildren
1995
Box 8: 5
Letters: grandchildren
1996
Box 8: 6
Letters: grandchildren
1997
Box 8: 7
Letters: grandchildren
1998
Box 8: 8
Letters: grandchildren
1999
Box 8: 9
Letters: grandchildren
2000
Box 9: 1
Letters: grandchildren
2001
Box 9: 2
Letters: grandchildren
2002
Box 9: 3
Letters: grandchildren
2003
Box 9: 4
Letters: grandchildren
2004
Box 9: 5
Menninger Alumni Scientific Writing Award for "Deception in the Interrogation Room: Sometimes Tragic for Persons with Mental Retardation and Other Developmental Disabilities"
2002
Box 9: 6
Nazi extermination of people with mental disabilities
1969
Box 3: 92
New Life in the Neighborhood: Japanese translation
2000
Box 9: 7
Newspaper clipping: Perske, Martha
1999
Box 9: 8
One to One Media award
1981
Box 3: 93
Popular Press Writing Award; "The Battle for Richard Lapointe's Life"
1997
Box 3: 94
Perske, Robert: Correspondence: Alfaro, Maria
2002
Box 9: 9
Recommending Bengt Nirje for AAMR International Award.
Perske, Robert: Correspondence: article, "Ain't Got No Resume"
2005
Box 3: 95
Perske, Robert: Correspondence: article, "Killers in MacDougall Prison--Real and Unlikely
2009
Box 3: 96
Concerning Richard Lapointe.
Perske, Robert: Correspondence: article, "Power of a Poet"
1989
Box 3: 97
Perske, Robert: Correspondence: article, "Robert Williams and the Great ADA Awakening"